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My Story: Down Syndrome

My connection to working with individuals with Down syndrome and their families is both personal and professional. I grew up alongside my sister, who has Down syndrome, which has shaped not only my understanding of neurodiversity, but also my respect for the strengths, individuality, and dignity of people with intellectual and developmental disabilities.

In addition to this personal connection, I have worked with several organizations supporting individuals with Down syndrome across the lifespan, including young adults building independence as well as parents navigating an unexpected or newly diagnosed Down syndrome pregnancy. These experiences have given me a deeper appreciation for the emotional complexity that can come with diagnosis, adjustment, advocacy, and long-term caregiving.

Across this work, I have supported individuals and families in a range of settings focused on skill-building, emotional support, and community integration. I am especially attuned to the importance of communication, autonomy, and helping each person be understood in a way that honors both their abilities and their needs.

I also recognize that a Down syndrome diagnosis can bring a wide range of emotions for parents and caregivers—grief, uncertainty, fear, hope, love, and adjustment often exist at the same time. My approach is to create space for all of these experiences without judgment, while helping families feel more grounded, informed, and supported as they move forward.

My clinical work in this area is informed by ongoing collaboration with disability-focused organizations and a commitment to staying connected to best practices in supporting individuals with intellectual and developmental disabilities. Most importantly, I strive to meet each person and family where they are, recognizing that no two experiences are the same.

Whether I am working with an individual with Down syndrome or supporting their caregiver, my goal is the same: to provide a space where people feel understood, respected, and supported in building a life that reflects their strengths, needs, and goals. I believe deeply in each person’s capacity for growth, connection, and meaningful participation in their world.